This is, and has been, the question as of late. Unfortunately since Nate's surgery things have been more difficult for everyone. Nate refuses to eat solids (due to the stuffing of medicine down we assume, which we all detest! Wish those pharm techs would have told me about flavoring AS I was getting prescriptions filled vs halfway done!), Nate is in pain, isn't sleeping well,etc. Naps are sortive ok but he's been up just about every hour during the night. We had to stop his pain med because of constipation, but nothing does an equal good job. So at night in particular, its been seeming pointless to sleep--by the time we do, we're up again...a vicious cycle.The most frustrating part is not knowing why he wakes up so frequently. Pain? Hunger? Spasms? Who knows. Tomorrow Nate gets the catheter removed so hopefully that will help things out as far as being uncomfortable/pain goes. We're bummed out that this has hit him pretty hard. Hopefully this will pass soon and he'll start to feel better and be back totally to himself.
On a happier note, he's getting closer to being more independent. He can make circles on his stomach now and lift his upper body up further.
Hopefully for the next blog we'll have some more cheerful news!
No comments:
Post a Comment